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Dear AOL, I Am Not a Freak

July 20, 2009 By Michele 1 Comment

*Note: Some graphic biological information ahead. And another note? I’m ticked and therefore ramble.*

Dear AOL,

I was reading what passes for your headlines today and saw your article, “Dual-Womb Mother Shocks Doctors.” I had to click. Because I have Uterine Didelphys.

Thanks a lot, AOL. You have made me look like a freak. No, I’m not the new mom from the article. I’m one of the thousands (millions?) with this “condition.” It’s a birth defect. And it’s not as uncommon as you may think.

Yes, I have two uteruses/uteri. Yes I have two cervices/cervixes. I get to have double the pap smears! Had to have a septum between the cervices removed to end pain for both myself and my husband during “relations.” I also get to have double the hormones, double the blood, double the PMS. (Don’t you want to be in my husband’s shoes now?) I’ve been hospitalized for loss of blood during a normal plain old period. Oh – and I have two children that I gave natural vaginal birth to.

It’s not as uncommon as you think. I have even run into doctors who have seen it before me. Sometimes. But you see, there are no doctors who specialize in it, and no one wants to study it. Here’s what I know about it from my various doctors visits over the years, as I’m now 34, and have known about it since I was 17.

Yes, there is some risk in pregnancy because sometimes the uteri are smaller. Not the “shocking” thing you make it out to be. And yes, you can have more than one pregnancy. I’m proof. Your hormones can also be out of wack. You can also have abnormalities in your kidneys so you need them to have an ultrasound to be sure. You also get the added benefit of potential cysts on your kidneys and/or uteri (Yep – I have several.)

And maybe if the medical community decided to study it, you’d have some more information. But they’re not interested. Instead, my crotch is a revolving door when I go to a new doctor because they’re so fascinated.

That’s right – I just said I have a fascinating cootch.

Want to know how that turns out? In labor with my first, I punched a nurse in the face and kicked a doctor in the face. Why? I had 5 doctors fascinated with my COMPLETELY NORMAL birth. Thanks for all those eyes up my privates at my most painful and most vulnerable. You know, ’cause I’m just a freak.

Let’s go over the article.

Dual-Womb Mother Shocks Doctors

So, we know they’re not very well-read.

A woman with two wombs gave birth to a healthy baby despite warnings that the chances were unlikely.

You’re not a freak, you just need to be monitored.

…was born through Caesarean section

Obviously, I don’t know the mom’s actual medical information and personal case. However, if it was JUST because of the Uterine Didelphys in an effort to “save the freak” it was a totally unnecessary medical procedure with it’s own risks. Just ask my vaginally delivered children.

…who has two sets of reproductive systems, surprises doctors and the medical world by giving birth to a healthy baby girl

Really? The medical world? Shoot – I could have been rich 9 years ago.

Doctors told her the rare condition would leave her with only a 50 percent chance of having a normal pregnancy.

Really? According to what? The medical community hasn’t studied it enough to have any numbers.

Physicians told her that although Mirela is healthy, she is likely to be the her only child.

How irresponsible!! Doom and gloom, seriously. Oh and again? I’m proof. And if we wanted more children, my body could indeed go again.

Look. That child IS a miracle. As ALL children are. And yes, I’m very glad that the mom found out about her uterine didelphys, because to be responsible about her body she’ll need extra paps, and her kidneys checked out, and that’s extremely important.

But as a “normal” mom with an “abnormal defect” in her body – I couldn’t help but feel like a total freak after reading this article.

So, thanks AOL! If nothing else, you gave me an excuse to get on my soapbox. I have been contacted by several people over the years. I once wrote a freelance article as a Layman’s Guide to Uterine Didelphys when I couldn’t find any information. And women with this condition still track me down to talk about it – even desperate enough to track down my home phone number (I talked to that mom worried that her daughter was going to DIE for an hour,) because the “medical world” can’t be bothered. You know what? That parts ok. I’m happy to help them understand that they’re going to be FINE.

Sincerely,

Michele Wilcox

P.S. – That new mom needs new doctors.

Update on the Tum Tum, er, Stomach

June 6, 2008 By Michele Leave a Comment

I went to the doctor for my three month follow up visit.

The meds are working to control things = good.

The meds if forgotten means noticeable symptoms = bad.

I’ve had a fever for every single appointment = bad.

So, basically, I’ve been living with a low grade fever for 6 months (unknown cause).  The medications are doing their job, but not fixing things.  He thinks that I might have a bacterial infection in my stomach causing all of this, however, I tested negative for the H. Pylori.  He said that there are others, so it still may be a factor.  I’m starting up two really strong antibiotics at the same time for two weeks, and keeping my other meds the same.  Another three month follow up.  If at that time nothing’s changed, and there’s a noticeable difference when I forget my meds, then it’s another endoscopy for me to see if the hernia and ulcers have gotten bigger.

However the whole fever thing?  May indeed be why I hit a wall at 2pm and could easily go to bed at that time.  I basically forcing myself to get through the rest of the day and evening with my family.

Wife. Mother. Daughter. Business owner. Please send coffee.

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