But aside from that, she's still completely normal
<shameless self promotion>
After that incredibly dreary post, here’s an update on the other stuff I’m doing around the web…
As always, I write at the Fun and Function blog.
And I have a fledgling business blog to go along with my business website.
::cough::Comment love is always appreciated.::cough::
</shameless self promotion>
We are having a bit of an issue around here that is pretty much dominating my thoughts at the moment.
First, this job of Poe’s said he would receive (sorely needed) health insurance after his probationary period of 90 days. That would have meant November 1st. Right? Yeah, not so much. They decided to wait on him until the open enrollment period, putting his effective date on January 1, 2011.
OK. That puts a serious crimp in things, as the kids are due for their physicals and blood work needs to be done on Joseph. But two more months won’t kill us.
We got the paperwork. It tells us the amount to cover family PER WEEK (he’s being paid weekly.) I think “They just mean that’s the monthly premium, removed each week.” You know, the monthly premium divided by four. WRONG.
Essentially, that IS the weekly amount. Let me explain what that means. By the time he’s done paying for health insurance, we would have approximately $400 per month to pay rent, utilities, groceries, gas, other insurance coverage, not to mention medical copays, random school things that come up, oh and clothes for winter for the kids since Logan’s pants apparently spontaneously combust. Since gas alone costs about $240 a month or more – you do the math. The whole thing alone won’t even cover rent.
I’m not making that much money in my business. Growing I am – but not THAT much.
We’ve gone to everyone we can think of, but yes, that’s the monthly amount as insane as it is. I still cannot believe it at all.
What this essentially means is I probably have to go back to work outside the home. Either, I need to get a job with benefits, or just a job. Then we’d have to find private insurance (which costs about 1/4 what they’re asking for) and then save up as much money as humanely possible, because Logan won’t be covered under private insurance since he has a preexisting (actually it’s CONGENITAL) condition and won’t be covered. His heart surgery alone (the timing of which we just don’t know) will probably run a total of $500K – $1M dollars, when you take all insurance out of the equation. That’s a rough estimate with inflation. We just won’t know until that time.
I just feel so defeated right now. We can’t pay for childcare, so we’ll be going back to the Poe sleeps when the kids are at school, while I’m at work, and pray they don’t need to be picked up early. It certainly feels like we’ll never get a break. I just don’t understand. We’re decent people. We work hard. We’re good parents. Why do the kicks keep coming?
Dear “A. Friend,”
I think I know who you are. But I won’t call you out – both because I’m not sure, and I don’t want to embarrass you by ruining your intended anonymity.
Thank you. From the bottom of my heart, thank you.
I’ve always wanted one of those foot scraper thingies. I love to read. The kids will dig the straws and Silly Bandz. And frankly? We have three days til payday with no money for food because one of my clients didn’t pay me on time. So that money you sent? Literally puts food in my kids’ mouths.
It was completely unexpected, made me cry (the good kind), and say a prayer of thanks.
And the chocolate won’t go to waste, let me assure you.
My friend, today you helped me immeasurably. I’m grateful. I thank you.
Love,
Michele
It’s 10/10/10 at 10:10am. 10:10:10:10:10
Yes I’m actually posting ahead so that this happens. It makes my little baby geek inside happy. If I could have gotten it to the second I would have been happier.
If you’ve been arou d the block with me, you know that one of my kids is on medication for mental health issues. That medication is not a cure, but in his words, “it makes my head calm.” It makes it so he can concentrate easier, think more clearly, and allows him to pause and make choices. He has therapy twice a week plus psychiatric care since he’s on medication.
We came to the medication decision after literally years of discussion, research, and prayer. He has a growing body and growing brain. We take his medication rather seriously. We expect others to do the same – especially his medical providers.
Last week I ran out of meds. There weren’t any refills. I called the psychiatrist. I got his nurse. His voicemail etc goes through her since he has patients most of the time in his office. I told her the problem. “But I see here he has an appointment next week. ” “Well, yes he does. But he doesn’t have enough pills to make it.”. “I’ll tell the doctor, but I’m pretty sure he’ll say ‘no’.”
I knew he’d say yes. This medication is working, we’d not discussed taking me off, and he’s been very clear he trusts my parenting instincts. When I didn’t hear back, I knew what had happened. The nurse decided she knew what was best. When I called back she told me I would just have to wait to talk to the doctor at our appointment. “Oh don’t worry, I will.”
I had a feeling that she never talked to the doctor. Sure enough, I get there and he didn’t know he was out of meds. And the reason? Because she didn’t put the refill in the system to begin with. He checked that because he specifically didn’t want us without meds. So, yeah. I totally got he in trouble. And he then told me how to get around the gatekeeper to get straight to him should we have trouble in the future.
It is so rare, as a special needs parent that I’m feel vindication. I think I’ll bask.
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